Haemophiliac patients suffer for lack of drugs at SMHS


SRINAGAR: Haemophiliac patients undergoing treatment at the SMHS Hospital here are at risk of permanent disability due to unavailability of drugs .
“Since last year’s floods not a single anti-haemophilic factor (AHF) is available in the hospital . Many
patients have been visiting the hospital for last four months only to return disappointed,” said haemophilic patient.
Hemophilia is an inherited bleeding disorder causing severe external or internal bleedings in the people suffering from the disease. The anti-haemophilic factors are given to the patients on the basis of the severity of the problem. The delay in administering the drug to the patient can prove life threatening. Presently there are around 250 haemophiliacs registered with the haemophilic society.
President Haemophilic Society Kashmir Syed Majid said that due to the non-availability of AHFs, many hemophiliacs for last four months have been rendered permanently disabled.
“The attitude of the authorities towards haemophiliacs is very pathetic. There is separate budget for the haemophilic patients but even then the SMHS authorities fail to ensure the availability of drugs at the hospital’s haemophilia centre putting the lives of the patients at risk,” said Majid
Majid, a haemophiliac himself, said that three patients who needed to be administered AHFs met the SMHS authorities and told them about their plight. “But the authorities told them to purchase the
same from the market. Later I spoke to authorities of Jammu medical college about a patient who was bleeding in his head who arranged a drug for him. I fail to understand what health care they are talking about when they cannot secure the lives of the people suffering from this deadly disease,” Majid said.
President Doctors Association Kashmir, Dr Nisar-ul-Hassan said haemophilic patients were at risk of contracting hepatitis B and C
“Due due to the non-availability of anti-haemophilic drugs the patients are being given fresh frozen plazma (FFP) without proper screening which could lead to hepatitis B and C,” Hassan said.
Incharge of the hospital’s haemophilic center Dr Rubi Reshi admitted that no AHFs were available in the hospital. “The non-availability of anti-haemophilic drugs is the result of paucity of funds. Government has not released the budget for the purpose. Once the funds are released drugs will be purchased,” Dr Reshi told Kashmir Reader.
On why there is shortage of drugs in the hospital frequently, she said, “That is problem with the administration. You should speak to the medical superintendent,” she said.